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19.02.2017
Othoses for Demid
Demid is 5; he lives with his mother in Glinkovo village, Tver region. The boy has difficulties unbending his both hands due to the deformity of the right wrist joint. Due to the contractures of the joints Demid cannot perform push-ups or bridging, clap his hands; the fingers of both hands are often in a bent condition.
13.02.2017
Vitalik needs our support
Dear friends, Our Fund wants to tell you the story of Vitalik, a boy with clever light eyes. Since his very birth Vitalik has had ICP and big problems with physical development; the child does not speak, walk, sit, cannot hold a spoon.
02.02.2017
Gosha has undergone orthotics
Gosha has undergone orthotics of his chest, elbow, radiocarpal, knee and ankle joints. The entire procedure took more than two hours and a half during which Georgy bore all the inconveniences bravely and helped the doctors to do their work. Later Georgy will wear these orthoses at different time with intervals as prescribed by the doctors, which is to result in correction of the deformity of his skeletal system.
28.01.2017
Meet Nastya
Nastya is a very positive and friendly child. The girl likes people, enjoys being among people and watching them closely. However, she cannot communicate by means of speech. Unfortunately, Nastya was born with congenital pathology and was immediately placed in the resuscitation department with intracranial pressure. The child developed slowly; doctors diagnosed ICP. In addition to all that, Nastya has a rare genetic disease: disorder of glycosylation, due to which the child has epileptic encephalopathy with mental retardation, muscular hypotonia, and epilepsy.
21.01.2017
Yaroslav is waiting for help
Olga Elizarova, Yaroslav’s mother, applied to us. Her son had a birth trauma which, unfortunately, had an adverse effect on the health and subsequent development of Yaroslav. The current diagnosis is: Miller-Dieker syndrome associated with mutation in the PAFAH1B1 gene. Paracephalia (subtotal lissencephalia, laminar subcortical heterotopy of the gray matter, dysmyelination of the white matter of the cerebrums, dysplastic ventriculomegaly). Infantile cerebral paralysis syndrome, hyptonic-astatic form. Psycho-speech delay. Epileptic encephalopathy.


90% of children in the Russia are able to recover from leukemia
The executives of Dima Rogachev Federal Research and Clinical Centre of Pediatric Hematology and Oncology at a meeting with the Russian president said, "In the Russian Federation, almost 90% of children suffering from acute lymphatic leukemia are able to recover, and 40% of children have the possibility to undergo the transplantation they need."
Development of Children's Palliative Care
The "Children's Palliative" charitable foundation is launching a regional program subsidized by the Ministry of Economic Development of the Russian Federation in order to support development of the Russian children's palliative care system.
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